Living with MS: Daily Tips to Survive and Thrive

Multiple sclerosis (MS) is a challenging chronic condition. Multiple sclerosis (MS) is a chronic condition that impacts the central nervous system and can cause a multitude of unpredictable symptoms. For those living with MS, daily life is full of obstacles – from managing fatigue and pain to dealing with cognitive issues and emotional stress. This is a guide to help you manage daily life with MS.

Diagnosing MS involves a series of evaluations and tests by a neurologist, as there is no singular test to diagnose MS.

Newly diagnosed or living with MS for years, coping with symptoms is always a challenge. Do you feel overwhelmed by all the adjustments you need to make to get through your day? You’re not alone. Many people with MS deal with this, but there’s hope.

Surviving with MS is all about finding the right balance of energy management, stress reduction and exercise. By developing these coping strategies, you can take back control and find ways to live with MS despite the challenges.

We want to give you the knowledge and tools to cope with MS and thrive. Let’s start with some practical tips you can use today to take back control and live more with MS.

Understanding Multiple Sclerosi

Multiple sclerosis (MS) is a chronic and often disabling autoimmune disease that affects the central nervous system (CNS), which includes the brain and spinal cord. In MS, the immune system mistakenly attacks the protective covering of nerve fibres called myelin. This damage disrupts the communication between the brain and the rest of the body, leading to a wide range of symptoms.

Common symptoms of MS include vision problems, muscle weakness, balance and coordination issues, fatigue, and cognitive difficulties. These symptoms can vary significantly from person to person and can change in severity over time.

The exact cause of MS remains a mystery, but research suggests it involves a complex interplay of genetic, environmental, and infectious factors. While there is no cure for MS, various treatments and therapies can help manage the symptoms and slow the progression of the disease. By understanding the nature of MS, you can better navigate its challenges and work with your healthcare team to find the best strategies for managing your condition.

Common Physical Symptoms

Fatigue is the most overwhelming symptom of MS, affecting up to 80% of people with the condition. This exhaustion can make even the simplest tasks feel like climbing a mountain. But don’t despair – there are fatigue-fighting techniques that can help you take back control and live better with MS.

Symptoms vary greatly from person to person, meaning not everyone will experience the same set or severity of symptoms simultaneously.

In addition to symptom management, diagnosing MS often involves analysing spinal fluid through a lumbar puncture. The presence of specific proteins, such as oligoclonal bands, in the spinal fluid is significant for confirming an MS diagnosis and determining the appropriate treatment path.

Save your energy

Think of your energy as a limited resource that needs to be budgeted. Saving energy is vital because it helps you stay productive throughout the day and reduces the risk of symptoms worsening from overexertion.

Find your pace with pacing:

Pacing means finding a rhythm with built-in breaks. You’ll get more done if you don’t burn out early in the day. It’s not about slowing down but maximising your energy by balancing activity with rest.

By using these strategies, you can better manage your MS symptoms and live a more active, fulfilling life. Here’s how to save your energy and pace yourself:

Plan your day around your energy: Do the essential tasks when you have the most power.
Prioritise: Focus on what’s most essential and save the less urgent tasks for later.
Use assistive devices: Make daily tasks more accessible with energy-saving tools.
Take regular, scheduled breaks: Build rest into your day.
Practice good sleep hygiene: Rest is critical to managing fatigue.

Adaptive Exercise Routines

Exercise is a powerful tool to manage MS symptoms and overall well-being. Incorporating low-impact, adaptive exercises can reduce fatigue, improve strength and flexibility, and boost mood.

When choosing exercises, focus on gentle, adaptable and energy-appropriate activities. Stretching, balance exercises, and low-impact activities like walking or swimming are all excellent options. Here’s how each type of exercise can help:

Stretching: Maintains flexibility and reduces muscle stiffness.
Low-impact aerobic activities: Swimming or walking reduces fatigue without overstraining muscles.
Strength training: Light weights or resistance bands improve muscle tone.
Balance and coordination exercises: Reduces the risk of falls.
Yoga or Pilates: Gentle, adapted movements improve flexibility and relaxation.

Start slow and build up gradually. Overexertion can worsen MS symptoms, so always listen to your body. Before starting a new exercise program, consult your doctor or a physical therapist specialising in MS to ensure your program is safe and effective.

Heat Management

For many people with MS, heat sensitivity makes symptoms worse. Staying cool is critical to comfort and symptom management. With a few simple lifestyle changes, you can reduce the impact of heat on your body and prevent flares.

Start by identifying the hottest part of your day and implement cooling strategies to prevent heat-related flares. Here are some tips:

Use cooling accessories like neck wraps or cooling vests.
Drink cold drinks.
Do outdoor activities in the more remarkable part of the day.
Use fans or air conditioning in your home.
Take cool showers or baths to regulate your body temperature.
Wear breathable, moisture-wicking fabrics and loose, light clothing.

Using these, you can manage heat sensitivity and reduce its impact on your symptoms.

Emotional Wellbeing and Mental Health

Living with MS can take a significant toll on your emotional well-being. Stress, anxiety and even depression are every day, but managing stress is essential not just for your mental health but for your overall symptom management.

Mindfulness is a powerful tool for managing the physical and emotional

challenges of living with MS. By practising mindfulness, you can calm your mind, reduce stress, and improve your mood. Regular mindfulness practice can also reduce fatigue and improve sleep.

Try these simple mindfulness techniques:

Mindful breathing: Focus on your breath for 5-10 minutes.
Body scan: Pay attention to each part of your body.
Mindful eating: Focus on your food during meals.
Guided imagery: Visualise calming scenes to reduce stress.

Adding mindfulness to your daily routine can improve your emotional well-being and help you cope with MS.

Building a Support Network

Living with multiple sclerosis can be challenging, both physically and emotionally. A solid support network is essential to cope with the disease and its impact on daily life. Here are some ways to build a support network:

National Multiple Sclerosis Society (NMSS): The NMSS is a fantastic resource for people with MS, offering information, support, and advocacy. They have local chapters and support groups nationwide, providing a sense of community and access to valuable resources.

Support Groups: Joining a support group can connect you with others who understand what you’re going through. Sharing experiences and advice can be incredibly helpful in managing the emotional and practical aspects of MS. Look for local groups or online communities where you can find support and camaraderie.

Family and Friends: Educate your loved ones about MS and its effects on your life. They can be a great source of emotional support and help with daily tasks. Open communication with your family and friends can foster understanding and provide you with the needed assistance.

Healthcare Team: Your healthcare team, including your neurologist, primary care physician, and other specialists, can provide medical guidance and support. Regular check-ins and open communication with your healthcare providers are crucial for managing your MS effectively.

Online Resources: There are many online forums, blogs, and social media groups dedicated to MS. These can be a great way to connect with others, share information, and stay up-to-date on the latest research and treatments. If local resources are limited, online communities can offer support and a sense of belonging.

Building a support network takes time and effort, but it’s essential to managing the challenges of MS and living a fulfilling life. Reach out, connect, and lean on your support network to help you navigate the ups and downs of living with MS.

Self Advocacy Skills and Support Groups

Living with MS means you need to be your own best advocate. By developing self-advocacy skills, you can ensure your needs are met and your voice is heard. Self-advocacy helps you navigate the healthcare system, understand your treatment options, and get the support you need.

Start by keeping a symptom journal to track changes and use it to prepare for your next doctor’s visit. This will help you communicate clearly and get proper care.

Daily Practicalities

Living with MS can present daily challenges, but technology and simple changes can make life easier. Here are some tools and tips:

Use voice-activated assistants like Alexa or Siri for hands-free control.
Try speech-to-text software for easier writing.
Install smart home devices to control lighting and temperature.
Use ergonomic tools to reduce strain on your joints.
Try mobility apps to find accessible routes and locations.

Using adaptive technology can help you stay independent and make daily life easier.

Conclusion: Living with Multiple Sclerosis

On tough days, remind yourself how far you’ve come and that you have the tools to keep going. When in doubt, contact your support network or healthcare team for guidance. You got this.

Living with MS is a big journey, but by using practical strategies like energy conservation, adaptive exercises and mindfulness, you can manage your condition and flourish. Celebrating every small win – every step forward shows your strength and resilience.

If you need more information or support, get in touch. Your well-being is our priority, and we’re here to support you every step of the way.

FAQs

Q: How can I beat fatigue caused by MS?

Plan your day around your peak energy times to do the important stuff when you feel best.
Take regular breaks throughout the day, even for just a few minutes.
Use energy-saving devices like grab bars or kitchen stools to make tasks easier.
Stay cool by avoiding hot environments and using cooling accessories.
Get into a regular sleep routine and practice good sleep hygiene so you’re well-rested.

By managing your energy, resting when needed and staying calm, you can reduce fatigue caused by MS.

Q: How can I make my home safer if I have MS?

Install grab bars in the bathroom for support near the toilet and in the shower.
Remove or secure loose rugs to prevent tripping.
Improve lighting in hallways and staircases to prevent falls.
Use non-slip mats in wet areas like bathrooms and kitchens.
Rearrange furniture to create more comprehensive pathways to move around with mobility aids.

Small changes can make a big difference in reducing accidents and making your home more comfortable and accessible.

Q: What exercises are suitable for people with MS?

Low-impact activities like swimming or walking to reduce strain and stay active.
Gentle stretching exercises to maintain flexibility and relieve stiffness.
Yoga or Tai Chi improves balance, focus, and relaxation.
Try light strength training with resistance bands or weights, but always work with a professional.
Seated exercises are a great option if standing or balancing is difficult.

The trick is to listen to your body and pace yourself, building strength and flexibility without overdoing it.

Q: Are there foods that can help with MS symptoms?

Eat plenty of fruit and veg, especially those high in antioxidants.
Choose lean proteins like fish or chicken to support muscle function.
Include healthy fats like olive oil, nuts and avocados to combat inflammation.
Limit processed foods, added sugars and unhealthy fats, which can exacerbate fatigue.
Drink water and herbal teas throughout the day.

A balanced diet can help you manage inflammation and energy.

Q: How can I sleep better if I have MS?

Get into a regular sleep routine, go to bed and wake up simultaneously each day.
Make your bedroom a sleep-friendly space: calm, dark and quiet.
Avoid screens for at least an hour before bed to help your mind wind down.
Try relaxation techniques like deep breathing or progressive muscle relaxation before sleep.
Talk to your doctor about managing any MS symptoms like spasticity or bladder issues that are disturbing your sleep.

Good sleep hygiene will help you feel more refreshed during the day.

Q: What should I tell my family and friends about MS?

Explain what MS is and how it affects your body, including the unpredictability of the symptoms.
Be honest about your symptoms and what kind of help you may need.
Tell them how they can help you—emotional support, practical help, or understanding on tough days.
Share resources so they can learn more about MS and understand it better.
Be open to their questions and concerns and encourage a two-way conversation.

Communication helps your loved ones understand what you’re going through and how they can help you.

Q; Can any tools or gadgets make daily life easier with MS?

Use voice-activated home assistants like Alexa or Siri to do tasks hands-free.
Try ergonomic kitchen tools that are easier to grip and use.
Mobility aids like canes or walkers help with balance and reduce fatigue.
Cooling vests and wraps to manage heat sensitivity on hot days.
Apps to track meds, manage symptoms and set reminders to stay on top of your care.

These will help with daily tasks, conserve energy and keep you comfortable throughout the day.

Q: How do I manage stress if I have MS?

Practice mindfulness or meditation to calm your mind and reduce stress.
Use deep breathing to reduce tension in stressful moments.
Do things that bring you joy and help you relax.
Join an MS support group to connect with others who get it.
Talk to a therapist who can walk you through stress management techniques if stress is overwhelming.

Stress management is critical to both emotional and physical health when living with MS.

Q: Can I work if I have MS?

Many people with MS work successfully and have suitable accommodations.
Learn about the accommodations you’re entitled to, like flexible hours or equipment modifications.
Be open with your employer about your needs, whether extra breaks, remote work options or a lighter workload.
Consider flexible hours or remote work if needed.
Know your disability rights so your workplace meets your needs.

By managing your workload and knowing your rights, you can continue working with MS.

Q: What are some fun MS-friendly hobbies?

Audiobooks are available if reading is challenging due to vision or fatigue.
Gardening in raised beds or containers allows you to be outdoors with less physical strain.
Painting or drawing to relax and express yourself.
Adaptive gaming with customised controls.
Knitting or origami to keep your hands busy and your mind focused.

It’s all about finding hobbies that fit your abilities and bring joy without adding stress or fatigue.

Everyone’s experience with MS is different. What works for one person won’t work for another. Always talk to your healthcare team before significantly changing your lifestyle or treatment.

Citations – Living with MS: Daily Strategies for Coping and Thriving

Disclaimer

The content on this blog is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with questions regarding Multiple Sclerosis or your health.

Personal experiences shared here are subjective and may not reflect everyone’s journey with MS. While we strive for accuracy, we make no guarantees about the completeness or reliability of the information provided.

This blog may contain links to external sites; we are not responsible for their content. Your use of this information is at your own risk.

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